Adventures of a Funky Heart writer Steve Catoe posted a story I sent him over the weekend about a heart mom I know who lost her baby at 40 days old.
Michael should still be here. He would be 2, and this Sunday would have been his third Mother's Day.
One mom who read this post asked if there was anything she could do. There is: Tell every heart parent you meet and know to be sure their child is seen and evaluated by board-certified pediatric heart specialist. Trust your instincts. Ask questions. Expect answers. Don't tolerate ego. Demand to be part of your child's care and treatment. Advocate, advocate, advocate.